Relying on God's promise that His timing is PERFECT.
My disability claim was denied. My conditions on my form included:
Fibromyalgia
Hypertophic facet disease
Degenerative disc disease (from the lowest disc to the highest in my spine)
3 bulging discs (L3/4, L4/5, L5/S1)
2 torn discs (L4/5, L5/S1)
Peripheral neuropathy (both legs & feet)
Chronic migraines
Chronic fatigue syndrome (CFS)
Chronic pain syndrome (CPS)
Insomnia
Spinal stenosis
I have official diagnoses of all of these conditions and documentation that I personally sent in to the Social Security Administration. I was never even seen by one of their physicians, which shows you how "seriously" they take into consideration those that have legitimate issues functioning daily and how "serious" they are about approving the legitimate cases that come through. Bottom line: they are trying to pass off all the cases on the first round (no matter how legitimate or serious) to create less of a workload for themselves. Praying for patience as I try to bare with the stress (and high pain levels that it creates) as I start the appeals process. I don't think these people realize what they do to those of us who are truly sick when they put us under this kind of stress.
Please pray with us as we attempt to appeal the claim. This is sometimes a long and frustrating road. Trying my best to trust that God has it laid out perfectly...
I am a blessed stay-at-home mom of twins and disabled. I strive to glorify God in the struggles of life, which shape us into His image. Advocacy and awareness of invisible and chronic disabilities are close to my heart, as I personally see the effects of a largely unaware society. I use a wheelchair for mobility in public settings for relief of chronic pain from my conditions. Read my Home/About Me page for more of my bio. Use the Follow Me setting/app to receive notifications of new posts.
Monday, April 21, 2014
Saturday, April 19, 2014
Through the Whispers
The whispers....the questions....the comments made behind our backs (a majority of the time, while we are standing right there in plain hearing range). I have always found that these comments (that cannot be heard) make it back to me in one way or another...usually through a friend who mentions that others had no idea what was going on.
"What's wrong with her? What happened? Why is she in a wheelchair? Why is she using crutches?"
I believe the intent of the person inquiring about the individual with a disability is innocent in most cases. People are simply intimidated by that which they don't understand or what is unfamiliar to them. Therefore, they do not know how to approach someone who is "differently-abled."
If you ask those of us who are disabled, the vast majority of us would much rather talk face-to-face to those who are concerned enough to ask questions. If it is done in the right way (which is not very difficult), then it is actually a very pleasant and informative conversation.
This next point is very important to me & (I believe) very valid:
I have more specific and accurate answers that I would like to share with people who are curious or concerned, but I can't share that when individuals ask others (and when I am easily available to answer those questions).
Many times, the inquirers are actually receiving wrong information that is perceived incorrectly or even opinionated by the person answering the questions.
So my effort today is simple. I am asking all friends and family to discontinue the talk that goes on behind those of us who face the hardship of disabilities. It's hard enough to be constantly judged by the general population as we stroll (or roll) through the local grocery store or post office. Instead, you can talk to us like you do everyone else. Ask us questions. Most of the disability community is willing to share their story IF YOU ASK.
How is this issue addressed in scripture?
God calls for his followers to treat everyone we encounter with dignity and respect. We are all equal in God's eyes. Jesus would treat me (in a wheelchair or using crutches) no differently than he would an able-bodied follower. Jesus would also approach a person with developmental impairments in the same manner. Many of us on this earth don't.
Romans 2:11
For God shows no partiality.
Let me speak to you from a humble heart for a moment. There have been times in my life where I have failed in this area of scripture and in this area of my relationship with my Heavenly Father. I have judged others. I am, by any means, no different from you in the fact that I am vulnerable to judging others and falling in the trap of sin. However, we (as followers of Christ) find conviction from the Holy Spirit when we do fall in this area. By God's amazing grace, we can find forgiveness. Furthermore, we realize that this action is harmful to others and against God's standard. Hopefully, prayerfully, God's grace and the Holy Spirit will change our actions and attitude.
Here are a few other scriptures to look further at:
Matthew 7:12
“So whatever you wish that others would do to you, do also to them, for this is the Law and the Prophets."
Mark 12:31
The second is this: ‘You shall love your neighbor as yourself.’ There is no other commandment greater than these.
___________________
"What Do I Say?"
Tips on How to Make Conversation with a Person with a Disability
So, what are some tips? Here are some things I would suggest to you on how to make conversation with someone with a disability.
*My best piece of advice - be yourself: treat us like you would want to be treated.
*Talk directly to the individual with the disability. This includes cases where friends, family members, or caregivers may be accompanying the individual with the disability.
*Use proper terms of conditions and injuries when talking to people with disabilities. Avoid at all costs labels (handicapped, victimized, retarded, insane, etc.).
*Once you have had all your questions answered about the individual with the disability, carry on a normal conversation about everyday life. This makes the individual feel that you are not interested solely in their condition, but also in their family, job, and other interests that are not related to their disability (they won't feel defined by their disability).
*Allow your children to meet and talk with people with disabilities. Those that are wheelchair-users, for instance, understand the curiosity of a child. We also understand that a child is not going to know what words/phrases are appropriate in today's culture to say to a person with a disability. We aren't offended by the innocence and curiosity of a child. I absolutely love getting to share my story with children. Their eyes light up when I pop a wheelie for them; that's when they really begin to connect. They realize (many of them, for the first time) that I am no different than they are - I simply do things in a different way. This awareness will also be an automatic fix (in most cases) for children who tend to stare at wheelchair users. Until they have an opportunity to meet someone who is willing to share their story, teach your children not to stare and gawk. It's your job as a parent. By the time they are 7 (if not sooner), they should definitely be over this stage of the innocent "stare".
______________________
For the person with the disability:
"How Do I Respond?"
Lastly, for those of us that face the hardships of disabilities on a daily basis, this issue is sure to come up. We've already discussed why others should address people with disabilities on a personal level. So how do we handle the occasion when others go behind our back, which can indeed be hurtful at times? God tells us to handle it with grace, gentleness and a heart of forgiveness. Yes, it's hard in the heat of the moment, but it's the right path.
Matthew 6:15
But if you do not forgive others their trespasses, neither will your Father forgive your trespasses.
Colossians 3:13
Bearing with one another and, if one has a complaint against another, forgiving each other; as the Lord has forgiven you, so you also must forgive.
Proverbs 15:1
A soft answer turns away wrath, but a harsh word stirs up anger.
2 Corinthians 8:7
But as you excel in everything—in faith, in speech, in knowledge, in all earnestness, and in our love for you—see that you excel in this act of grace also.
Ephesians 4:32
Be kind to one another, tenderhearted, forgiving one another, as God in Christ forgave you.
Sunday, April 6, 2014
Respecting the Blue
As I pulled into the last handicap parking space available and began the process of unloading my wheelchair, 2 able-bodied ladies (both adults) who were friends with one another easily waltzed out of the building carrying on a conversation about their illegal parking in the handicap zone. They were parked side-by-side, taking up a total of 2 of the 6 parking spots needed by so many genuinely-disabled individuals. And now that I had parked, there were none left. They lightheartedly giggled and carried on for several minutes. As they unlocked their vehicles and loaded their cars with their belongings, one of the ladies (about 65 yrs. old) bragged about how she's always parked in handicap because she can't walk too far, yet she's never gotten a ticket (because police never patrol handicap spots - I've never seen it, and when I call, they tell me they can't enforce it). She said she simply hasn't gotten a decal because she doesn't want to be "labeled" as handicap (Didn't you just "label" yourself if you parked in handicap?). (For the record, I have no problem with anyone with a legitimate decal, no matter how your appearance - but there is NO excuse if you don't have a decal. It's against the law, and it's not fair to those who really need that space.) They both saw me struggling to get my wheelchair out of the car while watching them carry-on their conversation at the same time. They waved. I waved. I didn't smile back, as I was literally disheartened that people I knew could be so thoughtless in their actions. As they pulled off, a man who I knew who uses a motorized wheelchair (and was circling the lot while the ladies were talking, in search of a handicap spot) pulled into one of the now-empty handicap spots. Prior to these ladies moving their cars, this man would not have been able to park at all. He would have had to turn around an make the trek home. Simply because two ladies were thinking of making things easier on themselves, rather than thinking of the needs of others.
PLEASE respect blue spaces. Parking further away can sometimes mean that we cannot park at all. Exemplify Christ by upholding the law. I expect it of young adults and in public places, but I did not expect it of adults who bragged of their wrong-doing. Please be an example.
PLEASE respect blue spaces. Parking further away can sometimes mean that we cannot park at all. Exemplify Christ by upholding the law. I expect it of young adults and in public places, but I did not expect it of adults who bragged of their wrong-doing. Please be an example.
Romans 13:1-5
Everyone must submit to governing authorities. For all authority comes from God, and those in positions of authority have been placed there by God. So anyone who rebels against authority is rebelling against what God has instituted, and they will be punished. For the authorities do not strike fear in people who are doing right, but in those who are doing wrong. Would you like to live without fear of the authorities? Do what is right, and they will honor you. The authorities are God’s servants, sent for your good. But if you are doing wrong, of course you should be afraid, for they have the power to punish you. They are God’s servants, sent for the very purpose of punishing those who do what is wrong. So you must submit to them, not only to avoid punishment, but also to keep a clear conscience.
A Timely Reminder
It had been a rough day. My pain levels were high. My fatigue levels peaked when the boys' energy levels peaked. The "terrible two's" have arrived. It was only noon. Incessant crying filled the house in response to a mother's discipline. In the midst of it all, I prayed. "God, help me. It's not even half-way through the day, and I'm exhausted and worn - emotionally, mentally, physically. Give me the patience, wisdom, strength. Don't let me forget that you are with me, Lord."
Parents can relate - especially stay-at-home moms, and especially those moms with chronic illness. Please don't misinterpret. I treasure my life as a mother. I treasure my children (see below for our story on how we came to have our miracle family - twins!). But there are moments and days that test us to the best of our capabilities. I believe God designed it that way. How else would we learn to rely on Him for what we need to get through the day?
As the day faded, so did my positive spiritual focus. God knew that I was in need of a reminder of His constant presence - no matter how trivial my problems may be, He is always with me. As I sat with the boys playing in floor of the kitchen, Brayden (one of my 2 1/2 yr.-old twins) pointed upward. Smiling, he excitedly and repeatedly said "Big Daddy!" - as if he could see God's presence. (We describe God to the boys as their "Big Daddy", and their earthly Dad is their "Little Daddy". They know who God is and that He loves them more than Mommy and Daddy ever could.)
I was so very humbled by those sweet, innocent words that worshiped our Creator. My 2 1/2 yr.-old child was that very reminder that God is always present with us, especially in the rough moments (no matter how trivial). It's amazing how God can use the most unexpected things in life to redirect us to Him. I'm still learning - every step along the way, and I have the greatest Teacher.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Background on how our family came to be: My husband and I struggled to have a family from the beginning of our journey as a couple. With my complicated medical issues, the likelihood of us carrying a child to term without moderate to severe complications on the baby were slim. We began to wonder if we would ever have the wonderful opportunity to parent. When God granted the desires of our heart, we were overwhelmed with joy. We felt like we saw the blessing of children from a totally different perspective, considering it was not wise (by medical suggestion) to conceive. But by God's standards, wisdom includes trust in His capabilities to handle what man cannot. We now have healthy 2-1/2 yr-old twin boys who are the joy of our lives. Praise God for answered prayer!
For a full story & testimony of twin pregnancy and delivery/NICU experience, click here.
Parents can relate - especially stay-at-home moms, and especially those moms with chronic illness. Please don't misinterpret. I treasure my life as a mother. I treasure my children (see below for our story on how we came to have our miracle family - twins!). But there are moments and days that test us to the best of our capabilities. I believe God designed it that way. How else would we learn to rely on Him for what we need to get through the day?
As the day faded, so did my positive spiritual focus. God knew that I was in need of a reminder of His constant presence - no matter how trivial my problems may be, He is always with me. As I sat with the boys playing in floor of the kitchen, Brayden (one of my 2 1/2 yr.-old twins) pointed upward. Smiling, he excitedly and repeatedly said "Big Daddy!" - as if he could see God's presence. (We describe God to the boys as their "Big Daddy", and their earthly Dad is their "Little Daddy". They know who God is and that He loves them more than Mommy and Daddy ever could.)
I was so very humbled by those sweet, innocent words that worshiped our Creator. My 2 1/2 yr.-old child was that very reminder that God is always present with us, especially in the rough moments (no matter how trivial). It's amazing how God can use the most unexpected things in life to redirect us to Him. I'm still learning - every step along the way, and I have the greatest Teacher.
Isaiah 57:15 (ESV)
For thus says the One who is high and lifted up, who inhabits eternity, whose name is Holy: “I dwell in the high and holy place, and also with him who is of a contrite and lowly spirit, to revive the spirit of the lowly, and to revive the heart of the contrite."
Deuteronomy 31:8 (ESV)
It is the Lord who goes before you. He will be with you; he will not leave you or forsake you. Do not fear or be dismayed.”
Psalm 139:7-10 (ESV)
Where shall I go from your Spirit? Or where shall I flee from your presence? If I ascend to heaven, you are there! If I make my bed in Sheol, you are there! If I take the wings of the morning and dwell in the uttermost parts of the sea, even there your hand shall lead me, and your right hand shall hold me.
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Background on how our family came to be: My husband and I struggled to have a family from the beginning of our journey as a couple. With my complicated medical issues, the likelihood of us carrying a child to term without moderate to severe complications on the baby were slim. We began to wonder if we would ever have the wonderful opportunity to parent. When God granted the desires of our heart, we were overwhelmed with joy. We felt like we saw the blessing of children from a totally different perspective, considering it was not wise (by medical suggestion) to conceive. But by God's standards, wisdom includes trust in His capabilities to handle what man cannot. We now have healthy 2-1/2 yr-old twin boys who are the joy of our lives. Praise God for answered prayer!
For a full story & testimony of twin pregnancy and delivery/NICU experience, click here.
Saturday, April 5, 2014
"Be Still, and Know that I Am God"
I wanted to take a minute and say thank you to everyone who has been praying for me during this past rough spell with my pain & fatigue levels and fibromyalgia. There is no strength at all in myself - it is all from my God. He is so very sovereign and good in the midst of everything that comes our way in this life. He is working on me...strengthening me....teaching me....speaking to me.....all in the midst of the times my body is forced to be still and quiet. We serve a Mighty God - One who comes to rescue us in times of trouble and need! Hallelujah!
Psalm 46:1-3, 8-11:
1 God is our refuge and strength,
an ever-present help in trouble.
2 Therefore we will not fear, though the earth give way
and the mountains fall into the heart of the sea,
3 though its waters roar and foam
and the mountains quake with their surging.
8 Come and see what the Lord has done,
the desolations he has brought on the earth.
9 He makes wars cease
to the ends of the earth.
He breaks the bow and shatters the spear;
he burns the shields with fire.
10 He says, “Be still, and know that I am God;
I will be exalted among the nations,
I will be exalted in the earth.”
11 The Lord Almighty is with us;
the God of Jacob is our fortress.
Psalm 46:1-3, 8-11:
1 God is our refuge and strength,
an ever-present help in trouble.
2 Therefore we will not fear, though the earth give way
and the mountains fall into the heart of the sea,
3 though its waters roar and foam
and the mountains quake with their surging.
8 Come and see what the Lord has done,
the desolations he has brought on the earth.
9 He makes wars cease
to the ends of the earth.
He breaks the bow and shatters the spear;
he burns the shields with fire.
10 He says, “Be still, and know that I am God;
I will be exalted among the nations,
I will be exalted in the earth.”
11 The Lord Almighty is with us;
the God of Jacob is our fortress.
It's Not "Goodbye", but "See Ya' Later!"
March 17th, 2014
Please be in prayer for my family. My Uncle Mark has gone to be with the Lord. Please pray for this precious family, for my Dad & his brothers (Pete, Tim, Andy) and especially for Mark's wife (Darlene). Please also be in prayer for Mark's parents (Ron & Joy) and Mark's children (Ben, Jessica) and their spouses and grandchildren, as well as extended family.
We have all been shocked by this sudden turn of events, and we are saddened by the loss of such a great man, yet overjoyed by knowing he is no longer suffering from pain, sickness and sin in the midst of a fallen world. When we know the King of Eternity, we no longer fear death. We may mourn for a season, but there is hope in our tears; there is no fear in death. It is not "goodbye", but "see ya later" Uncle Mark! Please save me a spot in the choir next to you!
No More Night - Sung by David Phelps, Written by Walter S. Harrah
We have all been shocked by this sudden turn of events, and we are saddened by the loss of such a great man, yet overjoyed by knowing he is no longer suffering from pain, sickness and sin in the midst of a fallen world. When we know the King of Eternity, we no longer fear death. We may mourn for a season, but there is hope in our tears; there is no fear in death. It is not "goodbye", but "see ya later" Uncle Mark! Please save me a spot in the choir next to you!
No More Night - Sung by David Phelps, Written by Walter S. Harrah
The timeless theme
Earth and heaven will pass away
It's not a dream
God will make all things new that day
Gone is the curse
From which I stumbled and fell
Evil is banished to eternal hell
No more night
No more pain
No more tears
Never cryin' again
And praises to the great I Am
We will live in the light of the risen Lamb
See all around
Now the nations bow down to sing
The only sound is the praises to Christ, our King
Slowly the names from the book are read
I know the King, there's no need to dread
No more night
And no more-ore pain
No more tears
Never cryin' again
And praises to the great I Am
We will live in the light of the risen Lamb
See over there
There's a mansion prepared for me
Where we will live with my Saviour eternally...
No more night
And no more pain
No more tears
Never cryin' again
And praises to the great I Am
We will live in the light of the risen Lamb
We will live in the light of the risen Lamb...
Jehovah Sabaoth, My Protector!
March 18th, 2014
I posted this on my Facebook a few weeks ago and had to share. I can't help but revel in the beauty of God's never-ending protection over His children!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God truly had a hedge of protection over myself and the boys today as we played outside in the backyard this evening. A large, heavy branch broke off a tree and landed just 3 feet away from both the boys and I (after I pulled one further away, too). Even more of a blessing - the boys were running under the direct path where the branch landed. I hugged the boys and cried out loud "Praise You, God! Praise You! Thank You for protecting my boys!"
Every moment we have breath deserves God's praise, but moments when we realize God's hedge of protection over us should be especially deserving of our cries of praise!
He is my Jehovah Sabaoth, the Lord of Hosts and our Protector!
I posted this on my Facebook a few weeks ago and had to share. I can't help but revel in the beauty of God's never-ending protection over His children!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God truly had a hedge of protection over myself and the boys today as we played outside in the backyard this evening. A large, heavy branch broke off a tree and landed just 3 feet away from both the boys and I (after I pulled one further away, too). Even more of a blessing - the boys were running under the direct path where the branch landed. I hugged the boys and cried out loud "Praise You, God! Praise You! Thank You for protecting my boys!"
Every moment we have breath deserves God's praise, but moments when we realize God's hedge of protection over us should be especially deserving of our cries of praise!
He is my Jehovah Sabaoth, the Lord of Hosts and our Protector!
Psalm 46:7
The LORD of hosts is with us; The God of Jacob is our stronghold.
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Image found on www.pinterest.com As many of you know (and had been faithfully & fervently praying over), I was scheduled for two spi...
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Prior to Use of Assistive Devices & Being Open About My Disability; Pregnant with the Twins (26 weeks); June 2011 Background (My C...
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Image by John Lund/Riser from http://gettyimages.com p. 112 - "...[Job] had discussed God, had notions about him, and had prayed t...